ABOUT THE

PROJECT

Rare Aid is a platform for people living with orphan, i. e. rare diseases. It is designed to educate patients and their families about treatment options and ways to advocate for their rights to medical care, to bring healthcare professionals together to share best practices, and to promote systematic charitable foundation activities.

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Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

Information partners

Internet and print media, specialized publishing houses about medicine and pharmacy which support our project.

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educational partners

Professional associations, medical education platforms, and outreach projects with which we develop joint initiatives to raise awareness of rare diseases.

RETINOBLASTOMA INFO

The mission of the project is to offer complete and reliable information about retinoblastoma (a malignant tumor of the retina) to both HCPs and the individuals diagnosed with this condition.

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ASSOCIATION OF OBSTETRIC ANAESTHETISTS AND CRITICAL CARE PHYSICIANS

A professional medical community dedicated to reducing maternal and perinatal mortality in Russia. The Association regularly updates clinical guidelines, organizes and hosts professional meetings, and promotes competent and confident work among the local HCPs.

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Med.Studio

An educational online learning platform for various HCPs. Med.studio offers cutting-edge, relevant, and up-to-date continuing medical education.

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Partner funds

These organizations support children and adults with a wide range of rare diseases.
We deeply appreciate the opportunity to assist them.
Charity Foundation 'Fragile People'

Helping people with osteogenesis imperfecta and other bone pathologies.

Foundation website
Charity Foundation 'Live Now'

Support for people with amyotrophic lateral sclerosis (ALS).

Foundation website
Charity Foundation 'Butterfly Children'

Systemic assistance for people with epidermolysis bullosa and ichthyosis.

Foundation website
ystemic assistance for people with epidermolysis bullosa and ichthyosis. Charity Foundation 'Sunflower'

Help for children and adults with immune disorders.

Foundation website
Charity Foundation 'Kind Hearts Club'

Targeted assistance for patients and systemic support for medical institutions.

Foundation website
Charity Foundation for helping severely ill children 'Live'

Help for children with malignant blood diseases.

Foundation website
Charity Foundation 'Gordey'

Systemic projects to assist patients with Duchenne muscular dystrophy.

Foundation website
Charity Foundation 'Life as a Miracle'

Support for children with severe liver diseases.

Foundation website
Charity Foundation "Special Path"

Support for children with developmental features

Foundation website

CONTACT US

FOLLOW US ON YANDEX ZEN

Read about recent medical breakthroughs and discover unique patient experiences on a Zen blog platform

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FEEDBACK

Please feel free to email us if you have any question or collaboration proposals, and we will be sure to respond promptly

EMAIL
OFFICIAL SYMBOLS

Color and black-and-white Rare Aid logos to be used in media and PR materials

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Awards

JOIN OUR HCP COMMUNITY

Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

KNOWLEDGE BASE

Explore clinical guidelines and scientific papers, attend webinars, learn more about drug products

DIAGNOSTIC SEARCH TOOL

Discover symptom combinations associated with rare diseases

EVENTS

Take part in educational conferences and discussions about rare diseases

DISCUSSIONS

Share your opinion and case reports

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