ABOUT THE

PROJECT

Rare Aid is a platform for people living with orphan, i. e. rare diseases. It is designed to educate patients and their families about treatment options and ways to advocate for their rights to medical care, to bring healthcare professionals together to share best practices, and to promote systematic charitable foundation activities.

Download a presentation

Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

JOIN OUR HCP COMMUNITY

Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

KNOWLEDGE BASE

Explore clinical guidelines and scientific papers, attend webinars, learn more about drug products

DIAGNOSTIC SEARCH TOOL

Discover symptom combinations associated with rare diseases

EVENTS

Take part in educational conferences and discussions about rare diseases

DISCUSSIONS

Share your opinion and case reports

JOIN US

CONTACT US

FOLLOW US ON YANDEX ZEN

Read about recent medical breakthroughs and discover unique patient experiences on a Zen blog platform

GO TO YANDEX ZEN
FEEDBACK

Please feel free to email us if you have any question or collaboration proposals, and we will be sure to respond promptly

EMAIL
OFFICIAL SYMBOLS

Color and black-and-white Rare Aid logos to be used in media and PR materials

DOWNLOAD A LOGO

Awards

OUR PARTNERS

RETINOBLASTOMA INFO

The mission of the project is to offer complete and reliable information about retinoblastoma (a malignant tumor of the retina) to both HCPs and the individuals diagnosed with this condition

GO TO WEBSITE

ASSOCIATION OF OBSTETRIC ANAESTHETISTS AND CRITICAL CARE PHYSICIANS

A professional medical community dedicated to reducing maternal and perinatal mortality in Russia. The Association regularly updates clinical guidelines, organizes and hosts professional meetings, and promotes competent and confident work among the local HCPs

GO TO WEBSITE

MED.STUDIO

An educational online learning platform for various HCPs. Med.studio offers cutting-edge, relevant, and up-to-date continuing medical education

GO TO WEBSITE