ABOUT THE

PROJECT

Rare Aid is a platform for people living with orphan, i. e. rare diseases. It is designed to educate patients and their families about treatment options and ways to advocate for their rights to medical care, to bring healthcare professionals together to share best practices, and to promote systematic charitable foundation activities.

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Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

Information partners

Internet and print media, specialized publishing houses about medicine and pharmacy which support our project.

educational partners

Professional associations, medical education platforms, and outreach projects with which we develop joint initiatives to raise awareness of rare diseases.

Partner funds

These organizations support children and adults with a wide range of rare diseases.
We deeply appreciate the opportunity to assist them.

CONTACT US

FOLLOW US ON ZEN

Read about recent medical breakthroughs and discover unique patient experiences on a Zen blog platform

GO TO ZEN
FEEDBACK

Please feel free to email us if you have any question or collaboration proposals, and we will be sure to respond promptly

EMAIL
OFFICIAL SYMBOLS

Color and black-and-white Rare Aid logos to be used in media and PR materials

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Awards

JOIN OUR HCP COMMUNITY

Every HCP might meet a patient with a rare disease in their practice. Join the Rare Aid platform as an HCP to gain access to educational webinars, scientific papers, a diagnostic search tool, an event calendar, and other valuable resources.

KNOWLEDGE BASE

Explore clinical guidelines and scientific papers, attend webinars, learn more about drug products

DIAGNOSTIC SEARCH TOOL

Discover symptom combinations associated with rare diseases

EVENTS

Take part in educational conferences and discussions about rare diseases

DISCUSSIONS

Share your opinion and case reports

JOIN US